Executive Director Message

 

StuartKlein.pngProton therapy continues to expand in the U.S. Back in 2006 when we opened, we were the fifth facility to operate in the U.S. Today there are now 27 proton facilities scattered across the country with even more being considered. What makes us different? In short, I believe it’s our people. We have approximately 220 employees that work in our center. Each represents the best and the brightest with an unquestioning dedication to provide our patients with the best care possible. This is engrained in our DNA. We constantly work hard to achieve this goal, and are grateful for the opportunity to serve our patients on their journey in beating cancer. We’re always open to suggestions on how to improve our service. Please let us know if there’s anything you feel we could do to improve.

 

Stuart L. Klein

Executive Director

Sarcoma Awareness

 

July is Sarcoma Awareness Month and Michael Rutenberg, MD, PhD, UF Health Proton Therapy Institute radiation oncologist and UF Department of Radiation Oncology assistant professor, was interviewed on First Coast Living about this rare cancer of the soft tissue and proton therapy’s role in treatment of the malignancy. As with other cancers treated with proton therapy, sarcoma patients can benefit from the targeted dose and reduced side effects. To learn more, watch the video below.

 

Survivor Spotlight – Kathleen Patti

By BeckyLynn Schroeder

Discovering a world beyond cancer treatment

Survivor Kathleen PattiProton alum Kathleen Patti, age 22, is discovering a world beyond treatment for rhabdomyosarcoma, a rare tumor of the soft tissues. Read more about her cancer treatment here. As a student at her “dream school,” Florida State University, she is enrolled in the university’s prestigious communications program and has plans to travel the world.

“The past will always shape who I am but I’m also at a weird point in my life. I’m eight years cancer free and, even with twice-a-year routine scans and tests, I’m also just starting to feel more and more like there’s a whole other world after treatment and an endless number of paths I can explore.”

Among the paths she envisions exploring are enrolling in a study abroad program and landing a “dream job” as a host on a Travel Channel program.

Growing up with cancer, Kathleen got to be comfortable with her “cancer path” and wants to hold on to what she has learned by helping others who are undergoing cancer treatment. This summer, she is working as an intern for the Live for Today Foundation, a nonprofit organization based in Jacksonville, Florida, whose mission is to offer help and support to young adults ages 18-35 with cancer. Kathleen joined the organization herself when she turned 18 and was experiencing a rough transition to an adult system from the pediatric health team she’d been working with since she was seven years old.

“Cancer is a weird thing. After going through it, it’s like you meet the one group of people that you never really wanted to know but, looking back, can’t imagine your life without,” Kathleen said. “The UF Health Proton Therapy Institute still stands out as one of the favorite places I went throughout my whole cancer experience. Everyone was so helpful and kind and it continues to be one of the happiest memories of my treatment.”

UF Promotes Two Radiation Oncologists

Dr. Julie Bradley and Dr. Roi Dagan

By Theresa Edwards Makrush

Julie A. Bradley, MD, and Roi Dagan, MD, MS, have been promoted to the rank of associate professor by the UF College of Medicine. “This is a very well-deserved promotion for both of them that reflects their distinction in clinical accomplishments, research and education,” said Nancy Mendenhall, MD, UF Health Proton Therapy Institute medical director and UF Department of Radiation Oncology professor and associate chair.

Dr. Bradley specializes in breast cancer and pediatric cancers. She leads the breast cancer program at the Institute and is the principal investigator on multiple breast cancer clinical trials. Her research in the use of proton therapy for breast cancer has demonstrated its effectiveness in controlling the disease while reducing radiation to the heart and lungs.

Dr. Dagan specializes in head and neck cancers and eye cancers. He directs the head and neck program at the Institute and has presented his research at many international medical conferences. His patient outcomes studies established early evidence that proton therapy improves local control of advanced sinonasal cancers and reduces the loss of vision and other serious side effects.

Rockin’ Out

By Pamela Gardener

Painted RocksThe Arts in Medicine program at UF Health Proton Therapy Institute (UFHPTI) has developed a unique version of the rock painting craze in a new, dual-purpose project.

For the uninitiated, the international trend of painting rocks and hiding them in public places for strangers to find is meant to “cultivate connections within communities and lift others up through simple acts of kindness,” according to the website of the original project founder Megan Murphy.

For our project, after scrubbing and bleaching river rocks, they are painted with a variety of images such as penguins, owls, ladybugs and cats. Inspiring words such as hope, love and strength are also painted on some of the golf ball-size rocks.

The hashtag #UFHPTI is painted on the bottom of each rock and then the artists – patients and their families – are encouraged to take them to their home state or country. A quick photo and post on Facebook or Twitter will let the world know how far the rocks have travelled. A short description of patients’ stories are encouraged as an interesting addition to their post. Be sure to include the hashtag #UFHPTI and tag our official Facebook and Twitter pages. The rocks can then be kept as a souvenir or hidden for someone else to discover and to learn about the UFHPTI program.

The second part of the project will stay closer to home. It will be a part of UFHPTI’s front yard, to be exact. Larger rocks are supplied for painting in the same fashion as the little ones, but they will serve more as a memorial and testimony to each patient’s strength and fortitude while receiving cancer treatment.

These rocks will be offered for painting to patients, family members, caregivers and staff. Once painted, they will cover an unadorned square of space surrounding a small palm tree in the courtyard. The plan is to fill the square with bright, hopeful colors to embrace the remembrances of friendships made during treatment.

The Arts in Medicine program seeks to enhance patient care with targeted projects to alleviate stress and provide a sense of well-being while undergoing cancer treatment.

Rare Breed Donation

By Theresa Edwards Makrush

A group of African-American men known as Rare Breed Motorcycle Club of Jacksonville has combined a passion for Harley-Davidson motorcycles with a desire to help people and communities. Through fundraising events like car washes, food sales and raffles, the members collect money to donate to local charities.

Last month, Rare Breed President John “TREY3000” Stephens, Treasurer Lovell Caldwell, and Business Manager Rafaell A. Harris visited the UF Health Proton Therapy Institute to make a generous gift of $250 to the pediatric program. The contribution adds to the more than $1,000 in Christmas gifts the group donated last December to make the holiday bright for children being treated at the Institute.

Stephens said he learned about the UF Health Proton Therapy Institute several years ago through his employer’s toy drive benefiting the pediatric program. After seeing the joy on the faces of children receiving presents at the holiday party, he knew he wanted to do more for the pediatric patients.

“We are grateful to be among the charities supported by the members of Rare Breed Motorcycle Club of Jacksonville,” said Lindsay Carter-Tidwell, director of development at UF Health Proton Therapy Institute. “Their generosity means children in our care will have fun activities to help them through their cancer journeys.”

About This Newsletter

The Precision Newsletter is an electronic-only publication that is distributed by email. Each issue is sent monthly to patients, alumni patients and friends of the University of Florida Health Proton Therapy Institute. As the official newsletter of the Institute, the content is compiled and prepared by our communications representative and approved by the editor Stuart Klein, executive director of UF Health Proton Therapy Institute. Special bulletin newsletters may occasionally be prepared when timely topics and new developments in proton therapy occur. If you would like to send a Letter to the Editor, please click here.

 

Keep In Touch

It is easy to stay in touch with us online at floridaproton.org . Look at the top right corner of the homepage for Facebook , Twitter and YouTube icons, click and join us in the social media conversation. Also on the right side of the homepage there is a button for VTOC Patient Portal . Click here to open your secure account, view your records, complete clinical trial questionnaires and communicate with your nurse case manager.

 

Knowing how you are feeling during and after treatment is essential to providing you the best care possible and contributes to the care of future patients.