Executive Director Message

StuartKlein.pngThis month I had the opportunity to travel to China to participate in two lectures and the signing of a Memorandum of Understanding to help bring pediatric patients from China to Jacksonville for proton therapy (more on the MOU below). In addition, I was invited to a dinner hosted by a Chinese family whose teenage son we treated last year. Their son, YS, has had a very difficult road. He was initially diagnosed at three years old with leukemia. He was successfully treated with chemotherapy but subsequently relapsed. He was treated again with chemotherapy and all seemed to be going well until he was diagnosed with a base of skull Ewing sarcoma. At this point he was 17 years old and required radiation treatment. YS and his mother traveled to Jacksonville to receive his proton treatment. YS was clearly not happy with having to go through treatment. He was understandably depressed and withdrawn, but managed to come out of his shell towards the end of his treatment course.

At last week’s dinner I had the opportunity to spend time with YS and his extraordinary family. Although their English was very limited, they were able to convey their thanks and appreciation for the treatment YS received at the UF Health Proton Therapy Institute. YS was outgoing, engaged and looking forward to applying for college. He had zero indications that he was treated with protons. This was clearly a family who had gone through great angst and trauma. They now had the opportunity to relax and once again function as a family unit by thoroughly enjoying each other’s company. It was truly inspirational to observe the impact that we had on a family that lives 8,000 miles away. Despite our language, cultural and political differences we were able to help mend and heal this family. It was a privilege and honor to observe our impact first hand.

 

Stuart L. Klein

Executive Director

About This Newsletter

The Precision Newsletter is an electronic-only publication that is distributed by email. Each issue is sent monthly to patients, alumni patients and friends of the University of Florida Health Proton Therapy Institute. As the official newsletter of the Institute, the content is compiled and prepared by our communications representative and approved by the editor Stuart Klein, executive director of UF Health Proton Therapy Institute. Special bulletin newsletters may occasionally be prepared when timely topics and new developments in proton therapy occur. If you would like to send a Letter to the Editor, please click here.

 

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It is easy to stay in touch with us online at floridaproton.org . Look at the top right corner of the homepage for Facebook , Twitter and YouTube icons, click and join us in the social media conversation. Also on the right side of the homepage there is a button for VTOC Patient Portal . Click here to open your secure account, view your records, complete clinical trial questionnaires and communicate with your nurse case manager.

 

Knowing how you are feeling during and after treatment is essential to providing you the best care possible and contributes to the care of future patients.