Patient Spotlight: Beth Semikin

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By Theresa Edwards Makrush

Encouragement from her family and friends led Beth Semikin to begin a blog about her experience dealing with a rare and complicated diagnosis of sarcoma. They thought her sense of humor was worth sharing with others. “I think if you can see the funny side of things, it helps to cope,” said Beth whose blog is cheekily named Tumour Has It. It has caught the attention of many cancer patients and news organizations including The Daily Mirror and ActionNews Jax.

She discovered writing about her cancer gave her a way to overcome the fear. “It was something I could do to normalize it,” said Beth in a recent interview as she prepared for her first of nine proton therapy treatments following weeks of conventional radiation at UF Health Proton Therapy Institute. 

Beth, who is a 22-year-old physics student at Imperial College in London, said she sees the blog as a way to raise awareness about sarcoma. “There’s a lot of misdiagnosis. Symptoms are overlooked and there’s not much awareness in the general public and the medical community about it,” she said. Her own symptoms began in December 2014 as a tingling sensation in her leg that over a few-week period became very painful. “If you have unexplained symptoms, nerve pain, a lot of trouble walking, it [sarcoma] could be something to consider,” she said.

She describes her time in Jacksonville as a “radiation vacation.”

“It’s gone really quickly. No real symptoms from the radiation. I feel here there’s such a feeling of safety, like I’m cocooned,” said Beth. Being with doctors she trusts and radiation therapists who have become friends eases the initial fear and uncertainty of travelling to the U.S. for treatment.

A friend of hers at home in the U.K. has started a fund to raise money for Sarcoma U.K., a nonprofit organization that provides information and support for sarcoma patients and their families and funds research. So far they have raised nearly £5,000 for the organization through the Beth Semikin Sarcoma Initiative.

You can subscribe to Beth’s blog at http://tumourhasit.co.uk/, and follow her on Facebook.com/TumourHasIt and Twitter @TumourHasIt.

About This Newsletter

The Precision Newsletter is an electronic-only publication that is distributed by email. Each issue is sent monthly to patients, alumni patients and friends of the University of Florida Health Proton Therapy Institute. As the official newsletter of the Institute, the content is compiled and prepared by our communications representative and approved by the editor Stuart Klein, executive director of UF Health Proton Therapy Institute. Special bulletin newsletters may occasionally be prepared when timely topics and new developments in proton therapy occur.  We will make every effort to remove your name from the list. If you would like to send a Letter to the Editor, please click here.

 

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